CAregiver REported and weighted Dementia outcome measure (CARED)

What is this Study about?

Caregivers of people living with dementia have direct experience of how the dementia is progressing. They are essential in evaluating the real-world benefits of treatment and making decisions to keep the person at home or consider different levels of care. The aim of this study is to develop a new CAregiver REported and weighted Dementia outcome measure (CARED).

The information will be used to create a new dementia outcome measure from the perspective of caregivers.

This study has been reviewed by the Hamilton Integrated Research Ethics Board under Project #14086.

What Will Happen in This Study?

Participants will fill out an online survey that is anonymous and takes approximately 45 minutes to complete. The survey involves:

· Completing a brief questionnaire about demographic and health related information.

· Completing the CARED outcome measure and rating how important each question is.

Who is Eligible to Participate in this Study?

You are eligible to participate if you are:

  • A caregiver, at least 18 years of age, and supporting a friend, partner, or family member with a diagnosis of dementia living in the community.

If you are interested in learning more about this research project and wish to participate, please click on this link: https://redcap.link/CARED-CA-2024

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