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Assessing the Current Resources Available to Caregivers/Care Partners for Persons Living with Young Onset Dementia

What is this Study about?

The objective of this study is to understand: (1) what community-based interventions caregivers/care partners for persons living with young onset dementia (i.e., dementia diagnosed under the age of 65) are accessing across Southern Ontario; (2) caregivers/care partners perceptions towards the community-based interventions they have accessed; and (3) the reasons, if any, for not accessing community-based interventions.

The results of this study will be used to help inform the development and enhancement of community-based interventions for persons living with YOD and their caregivers/care partners, and is a part of my PhD dissertation.

What Will Happen in This Study?

As a participant you will be asked to complete an online survey via Qualtrics (approximately 18-25 minutes in length).

Who is Eligible to Participate in this Study?

To participate you must:

-be a family caregiver or care partner to a person living with young onset dementia OR

were a family caregiver/care partner to a person living with young onset dementia within

the past six months

-be 18 years or older

-live within Southern Ontario

Get in Touch About this Study

Legal Disclaimer

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Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers

Target Age Group(s)

18-40, 41-65, 66+

Study Location

Online
Canada-Wide

Study Contact

Hailey O'Neil
PhD Candidate
Wilfred Laurier University

Recruitment Start Date

April 7, 2025

Recruitment End Date

August 31, 2025
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Toronto, Ontario M4R 1K8
Information and Referral Line: 1-855-705-4636
Email: research@alzheimer.ca

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