Exploring Resilience in Informal Caregivers of People Living with Dementia

What is this Study about?

This research study focuses on resilience, defined as a trajectory in which an individual can not only adapt but enhance and grow in challenging circumstances. This research aims to: 1) explore resilience-related behaviours in the context of informal Plwd caregiving by examining which behaviours are related to resiliency and how these behaviours are meaningful to caregivers and 2) determine the role of environmental and individual factors in resiliency of caregivers of Plwd. I gave begun the first part of this study, will involved forming a caregiver research partner team to help to identify potential behaviours, characteristics and resources that promote resiliency in caregivers. They have worked with me in further developing research questions and methodology for a large-scale survey study, which I am recruiting for now. Choice of survey measures will be guided by both previous literature and research partner input. This research also includes a cognitive component in order to ascertain the role of cognitive abilities in resiliency. The results of this research will assist in determining the most appropriate social and community supports for caregivers of Plwd and the individual, cognitive, psychological, and social factors that need to be considered when determining suitability between specific supports and individual caregivers. Improving supports for caregivers will improve both caregiver and PlwD health and well-being, and allow Plwd to live at home for longer.

What Will Happen in This Study?

Before participating in the study, you will complete a brief screener (5-10 minute phone call) in order to determine your eligibility. The study itself involves completing an online survey which includes questions related to your wellbeing and your role as a caregiver including caregiving duties, stress, environment, mental health, etc. There is a second, optional part of the study which involves completing online cognitive tasks (similar to brain games).

Screening: 5-10 minute phone call

Part 1: online survey (~45-60 minutes)

Part 2 (optional): online cognitive tasks (~30 minutes)

You will be compensated for your participation.

Who is Eligible to Participate in this Study?

- You are currently an unpaid caregiver for someone living with dementia in Canada

- You have been in this caregiving role for at least 1 year

- The person you care for may live with you, in their own home or in long-term care

- You must be able to complete an online questionnaire in English

- You have access to an internet connection and device

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