Exploring Service Availability and Support for Alzheimer’s Caregivers: An Asset Mapping and Co-Design Approach.
What is this Study about?
1. The study aims to understand the needs of caregivers of individuals with Alzheimer’s disease, as well as assess the services they currently access or would like to access based on caregiving stages.
2. Participants will have the opportunity to share their experiences and provide valuable input to help us co-create tools and services that better meet the needs of Alzheimer’s caregivers.
What Will Happen in This Study?
1. Participants will be involved in an interview describing their experiences caring for people living with Dementia at each of the caregiving stages. Some of the participants will also be involved in in-person focus group discussions, which will inform practical advice, tools, and products for caregivers of individuals with Alzheimer’s disease.
2. Duration: Approximately 1 hour
Who is Eligible to Participate in this Study?
1. Caregivers who are providing care to a loved one with Alzheimer’s disease or related dementias, particularly those in the following caregiving stages: o Monitoring initial symptoms o Navigating diagnosis o Assisting with instrumental and basic activities of daily living o Preparing for the future
o Monitoring initial symptoms
o Navigating diagnosis
o Assisting with instrumental and basic activities of daily living
o Preparing for the future
2. Service providers (e.g., healthcare professionals, social workers, home care aides) who deliver Alzheimer’s related care or services to individuals in these caregiving stages
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