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Exploring Service Availability and Support for Alzheimer’s Caregivers: An Asset Mapping and Co-Design Approach.

What is this Study about?

1. The study aims to understand the needs of caregivers of individuals with Alzheimer’s disease, as well as assess the services they currently access or would like to access based on caregiving stages.

 2. Participants will have the opportunity to share their experiences and provide valuable input to help us co-create tools and services that better meet the needs of Alzheimer’s caregivers.

What Will Happen in This Study?

1. Participants will be involved in an interview describing their experiences caring for people living with Dementia at each of the caregiving stages. Some of the participants will also be involved in in-person focus group discussions, which will inform practical advice, tools, and products for caregivers of individuals with Alzheimer’s disease.

2. Duration: Approximately 1 hour

Who is Eligible to Participate in this Study?

1. Caregivers who are providing care to a loved one with Alzheimer’s disease or related dementias, particularly those in the following caregiving stages: o Monitoring initial symptoms o Navigating diagnosis o Assisting with instrumental and basic activities of daily living o Preparing for the future

o Monitoring initial symptoms

o Navigating diagnosis

o Assisting with instrumental and basic activities of daily living

o Preparing for the future

2. Service providers (e.g., healthcare professionals, social workers, home care aides) who deliver Alzheimer’s related care or services to individuals in these caregiving stages

Get in Touch About this Study

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In no event shall the Alzheimer Society of Canada or any third parties mentioned on the website be liable for any damage (including, without limitation, incidental and consequential damages for personal injury/wrongful death, lost profits or damages resulting from lost data or business interruption) or personal injury (including death) resulting from the use, misuse or inability to use any activity, product or service mentioned herein, whether based in warranty, contract, tort or any other legal theory.

Everyone considering participating in any activity is encouraged to speak with their own doctor or health-care team before participating in any activity that may impact their health or well-being.

Observational Study

Target Population

Caregivers, Researchers and Healthcare Professionals, Family members

Target Age Group(s)

18-40, 41-65, 66+

Study Location

Online

Ontario

Ontario

Study Contact

Wendy Ekemezie
Research Assistant
Sinai Health

Recruitment Start Date

July 17, 2025

Recruitment End Date

July 31, 2026
  • Learn more about observational studies
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Alzheimer Society of Canada
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Toronto, Ontario M4R 1K8
Information and Referral Line: 1-855-705-4636
Email: research@alzheimer.ca

Charity registration number: 11878 4925 RR0001

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