Tough Choices in Dementia Care: How Caregivers Weigh Risk and Effort in Treatment Options

What is this Study about?

This study explores how family caregivers make treatment decisions when managing emotional and behavioural symptoms in dementia. We aim to understand how caregivers weigh the risks and benefits of pharmacological options, like antipsychotic medications, versus non-drug strategies such as environmental modifications. The information gathered will help identify decision-making patterns and inform future caregiver support resources. Participation involves completing an anonymous online survey. Only caregivers involved in medical decision-making for a relative or close friend with dementia are eligible.

What Will Happen in This Study?

Participants will complete a one-time, anonymous online survey about their caregiving experiences and treatment choices, which will take approximately 60–90 minutes. The information gathered will help inform caregiver resources and support programs.

Who is Eligible to Participate in this Study?

Participants will consist of caregivers of individuals with dementia who meet the following eligibility criteria:

Participants must be at least 18 years old,
Participants must be able to read English fluently,
Participants must be a family caregiver (partner, spouse, family member, or close friend) of a
person with dementia
Participants must be involved in the medical decision-making for the person with dementia,
Participants must have access to a desktop computer, laptop, or another device with a physical keyboard and mouse/trackpad,
Participants must not be a professional healthcare provider (e.g., physician, nurse, certified nursing assistant).

Additionally, the person with dementia whom they are assisting must be community-dwelling (i.e., they cannot be residing in a residential or skilled nursing facility).

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