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  • Observational Study
    Online

    Understanding the Needs and Gaps in Support for People Living with Dementia

    What is this Study about?

    This study aims to identify the gaps in the community-based supports and services to meet the needs of people living with dementia and their care partners. We hope that the findings will help inform the development and improvement of programs and services.

    Eligibility Criteria

    • People living with dementia, mild cognitive impairment, or memory/cognitive challenges
    • Caregivers of people with dementia, mild cognitive impairment, or memory/cognitive challenges
    • Health care professionals
    • Community service or social care providers
    • Researchers in the field of dementia
    • Living in Canada

    Recruitment End Date

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  • Observational Study
    Online

    Exploring Service Availability and Support for Caregivers to Persons with Alzheimer’s Disease in Ontario

    What is this Study about?

    This study aims to explore the availability of services and supports for caregivers of persons living with Alzheimer’s disease and related dementias across Ontario, with a focus on time-based caregiving support needs and implementation considerations. We are seeking caregivers and health or community service providers to participate in 60-minute interviews or co-design sessions, either in person or online via Zoom. Participants will be asked about their experiences with existing services, unmet caregiving needs, and ideas for improving support. Findings will be used to inform the development and implementation of caregiver-focused resources, services, and future research initiatives.

    Eligibility Criteria

    You are eligible to participate if you are:

    • a caregiver of a person living with Alzheimer’s disease or a related dementia in Ontario
    • are a healthcare, community, or social service provider who supports persons living with Alzheimer’s disease or related dementias and their caregivers in Ontario
    • are 18 years of age or older
    • are able to participate in an interview or co-design session in English.

    Recruitment End Date

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  • Observational Study
    In person & Online

    Assessing the Impact of Day programs on individuals living with Dementia and their family/friend Caregivers

    What is this Study about?

    This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.

    Eligibility Criteria

    You are eligible to participate if you:

    • Are an older adult living with dementia who attends or does not attend a day program

    • You are a family/friend caregiver of someone living with dementia who attends or does not attend a day program

    • Live in one of the participating regions (Ontario, Winnipeg MB, Calgary AB, or Interior BC)

    • Are able to take part in a conversation or complete surveys, with support if needed

    Recruitment End Date

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  • Observational Study
    Online

    CAN-PROTECT

    What is this Study about?

    CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.

    Eligibility Criteria

    - Age 18 years or older

    - Reside in Canada

    - Have access to a computer/touchscreen device

    - Can provide informed consent

    - Do not have a diagnosis of dementia

    - Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments

    - Ability to speak English

    Recruitment End Date

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