The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
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Selecting one or more of the options below will update the content below.
- Clinical TrialOnline & In-Person
What is this Study about?
The aim of this study is to assess the feasibility of the Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s Disease (NITE-CAD) program. NITE-CAD is a 6-week lifestyle intervention program aimed to improve sleep in people living with dementia by supporting their care partners. The information gathered will be used to improve the program for future offerings.
Eligibility Criteria
• Care partner to someone living with dementia with sleep difficulties
• Are living with dementia experiencing sleep difficulties, with a live-in care partner who is interested in participating
• Able to speak and understand English
• Have access to the internet and a computer with a camera and microphone
• Able to participate in an exercise program
• Sufficient cognitive function to follow two-step commands.
Recruitment End Date
- Observational StudyOnline & In-Person
What is this Study about?
Focus groups will discuss lived experiences making decisions about end of life nutrition care with residents living in long-term care to explore strengths or gaps in care that can be leveraged or addressed. Focus group discussions will be used to co-produce resources to support residents and family members with end of life nutrition care decision making (e.g., clinical pathways, decision-trees, patient and family education tools, etc).
Eligibility Criteria
- are 18 years or older at the time of the focus group
- are a current or bereaved (minimum 3 months bereaved) caregiver of a Saskatchewan long-term care resident
- are able to speak, read, and understand English
- are willing and able to use Zoom
- have access to a stable wi-fi connection
Recruitment End Date
- Observational StudyOnline
What is this Study about?
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
Eligibility Criteria
-Identify as an individual living with dementia
-Identify as a care partner
-Are over the age of 19
-Have posted on social media about living with dementia or being a care partner
-Speak English
If you are interested in participating, please contact mallorie.tam@ubc.ca or sign up using the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_5nGjQ2K27SEZwOi
Recruitment End Date
- Observational StudyOnline
What is this Study about?
CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.
Eligibility Criteria
- Age 18 years or older
- Reside in Canada
- Have access to a computer/touchscreen device
- Can provide informed consent
- Do not have a diagnosis of dementia
- Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments
- Ability to speak English
Recruitment End Date
- Clinical TrialOnline
What is this Study about?
Caregivers of people living with dementia experience significant stress which can negatively affect their mental health. The overall aim of the current study is to evaluate a newly developed app that focuses on providing stress-management strategies for family caregivers of people living with dementia. Findings from the study of an app that aims to address the stressors associated with caregiving has the potential to improve the quality of life of caregivers of people living with dementia.
Eligibility Criteria
- Providing informal and unpaid care (e.g., spouses, children) for people living with dementia
- Providing primary care (i.e., most of the care or equally shares the care with another individual such as a mother or sibling) for the person living with dementia
- Own a smartphone (e.g., iPhone, Android)
- Not currently using a mobile app created for caregivers
- Ability to speak English
Recruitment End Date
- Clinical TrialOnline & In-Person
What is this Study about?
To examine the effects of a stress management program on well-being, stress, and cognition in family caregivers of someone with dementia or a related neurodegenerative disorder. We will be recruiting participants from 2023 - 2027.
Eligibility Criteria
- are a primary family caregiver of a person with dementia or a related neurodegenerative disorder.
- have access to a computer with high-speed internet; and feel comfortable using email and Zoom (a secure online meeting platform).
- have a video camera on your device. To ensure safety of participants during the program sessions, it is important that participants turn on their video camera. Keeping the video camera on is also important to build trust within the group sessions and when interacting with the researchers.
- are willing to be randomised to one of 3 groups, even if it is not your preferred group.
- are able to commit to a synchronous 8-week online group-based program (described below) and complete daily prescribed daily home practices.
- are able to commit to three assessment sessions: one baseline assessment, one post-program assessment, one 12-month follow-up assessment.
- agree to audio recording of interview sessions and portions of the assessment that require accurate verbal data collection.
- are able to provide blood samples, potentially after a 12-hour fast.
- are able to travel to a LifeLabs clinic for biomarker collection.
- agree to refrain from participating in new studies or programs during the 8-week study session.
- meet the screening criteria during the pre-screening interview.
- ability to speak English.
Recruitment End Date
- Observational StudyOnline & In-Person
What is this Study about?
The purpose of this study is to assess whether a virtually-delivered healthy lifestyle intervention (over Zoom) is feasible for individuals who feel that their memory or thinking is declining.
Eligibility Criteria
-Are between the age of 65-85
-Are concerned about your memory and other thinking abilities
-Have access to internet at home
-Are a resident of Saskatchewan, Manitoba, Ontario, or Quebec
Recruitment End Date
- Observational StudyIn-Person
What is this Study about?
The aim of our study is to better understand whether certain lifestyle factors (such as physical activity and hearing) are related to early changes in memory and thinking abilities in older adults. We are especially interested in enrolling individuals who are South Asian or East Asian, because little research has focused on brain health in Canadians of diverse racial/ethnic backgrounds.
By participating, you will help us better understand how lifestyle factors are related to memory and thinking changes in adults from diverse communities. We hope that this will lead to improved prevention and early intervention strategies for dementia.
Eligibility Criteria
You are eligible to participate if you…
- Are 55-85 years old
- Have no major medical or psychiatric diagnoses
- Are comfortable speaking and reading English
- Are able to undergo an MRI scan
-Speak English
Eligibility is dependent on an additional conversation with the study team.
Recruitment End Date
- Observational StudyOntario
What is this Study about?
Caregivers of people living with dementia have direct experience of how the dementia is progressing. They are essential in evaluating the real-world benefits of treatment and making decisions to keep the person at home or consider different levels of care. The aim of this study is to develop a new CAregiver REported and weighted Dementia outcome measure (CARED).
Eligibility Criteria
- Caregiver to a person living with dementia
- You provide assistance with activities of daily living
Recruitment End Date
Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor
Toronto, Ontario M4R 1K8
Information and Referral Line: 1-855-705-4636
Email: research@alzheimer.ca
Charity registration number: 11878 4925 RR0001
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