The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
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Selecting one or more of the options below will update the content below.
- Observational StudyIn person & Online
What is this Study about?
This study explores the experience of family and friend caregivers when they are supporting a person living with dementia to discharge from hospital including the emergency room. It focuses on how caregivers experience discharge planning processes and policies, how their perspectives and needs are considered at this key time, and the impacts upon the person they care for and themself in the 6 months after a hospital stay. We will used findings to develop recommendations to improve understanding of the role, needs and rights of caregivers as they care for people who live with dementia in the community.
Eligibility Criteria
Caregivers:
- are the primary family or friend caregiver of a person living with dementia who lives/lived in the community
- the care recipient was in hospital including the emergency room and discharged to the community within the last 3 years
- you provided care between 0-3 years ago
- you provided care in Ottawa or the surrounding 200 km
- you are comfortable taking part in a 60-minute interview in English, French or in a different language (translation services are available)
- the care recipient did not have an acute life limiting condition such as terminal cancer for the entire duration of your journey of providing care.
Social Workers
- are a social worker who currently or within the last 3 years worked with people living with dementia who are discharging or who discharged from a health care facility. This may include hospital and community-based social workers.
- you work in Ottawa or the surrounding 200 km
- you have worked a minimum of 3 months in this role
Recruitment End Date
- Observational StudyOnline
What is this Study about?
This research will examine the psychosocial impact on informal male caregivers of persons with dementia, focusing on the emotional, psychological, and social challenges they encounter while providing care. It explores the emotional, psychological, and social challenges they experience, as well as their coping strategies, support systems, and spiritual resources. A mixed-methods design will be used to examine the psychosocial experiences of informal male caregivers caring for dementia patients. Quantitative data will be collected using standardized caregiver burden and coping measures, and qualitative data will be gathered through open-ended questions to gain a deeper understanding of caregivers’ lived experiences and stressors.
Eligibility Criteria
- are a male
- between the ages of 41
- 70 years
- An informal (unpaid) caregiver of a family/friend diagnosed with dementia
-are currently providing, or have provided care and support for that individual
- are willing to complete questionnaires and answer open-ended questions about your caregiving experiences.
- are willing to do questionnaires and open-ended questions by phone or in person
Recruitment End Date
- Observational StudyIn person & Online
What is this Study about?
This study explores how adult day programs affect the lives of people living with dementia and their caregivers across several Canadian regions. Over time, we gather information about health, well-being, daily experiences, and quality of life of people living with dementia who attend day program and their caregivers. We also aim to learn about day programs themselves, such as their activities, staffing, challenges, and successes. By combining surveys, interviews, and focus groups, our program of research aims to understand what makes day programs helpful, where challenges exist, and how day program can better support families, and people who use them.
Eligibility Criteria
You are eligible to participate if you:
• Are an older adult living with dementia who attends or does not attend a day program
• You are a family/friend caregiver of someone living with dementia who attends or does not attend a day program
• Live in one of the participating regions (Ontario, Winnipeg MB, Calgary AB, or Interior BC)
• Are able to take part in a conversation or complete surveys, with support if needed
Recruitment End Date
- Observational StudyOnline
What is this Study about?
The objective of this study is to better understand caregivers’ perspectives regarding the pharmacological management of the behavioral and psychological symptoms of dementia (BPSD). While current recommendations are largely based on the opinions of healthcare professionals and experts, the viewpoint of caregivers remains underexplored. By better understanding their experience, we hope to contribute to improved guidelines and care for individuals with neurocognitive disorders.
Eligibility Criteria
- Reside in Canada and be 18 years of age or older.
- Be a current or recent (within the past year) caregiver for a person diagnosed with dementia
Recruitment End Date
- Observational StudyOnline
What is this Study about?
The aim of this study is to understand how people with dementia, family/friend carers and healthcare providers experience the Driving and Dementia Roadmap website. This website contains resources to help people in the decision-making about when to stop driving and adjust to life after driving. We are also interested in knowing how the Driving and Dementia Roadmap may impact how people manage stopping to drive. The findings of this study will be used to improve and ensure that resources, like the Driving and Dementia Roadmap will continue to be available for people with dementia and those who support them.
Eligibility Criteria
You are eligible to participate if you are a:
a) Person living with dementia who is still driving or has stopped driving within the past 2 years
b) Family member or friend who is caring for or providing support to a person with dementia who is still driving orhas stopped driving within the past two years
c) Healthcare provider (physician, occupational therapist, nurse practitioner) who cares for people living with dementia
Recruitment End Date
- Observational StudyIn person & Online
What is this Study about?
This study explores the air travel experiences of people living with dementia and their travel companions. We want to understand moments that may feel stressful, confusing, or overwhelming when travelling by air. The information gathered will be used to create recommendations for airlines, airports, and policymakers, helping to make air travel more dementia-friendly, supportive, and enjoyable for people living with dementia and their families.
Eligibility Criteria
You are eligible to participate if you are:
- A person living with dementia who has flown before, or a travel companion who has supported someone living with dementia during air travel
- Willing to share your experiences in a friendly conversation
- Able to communicate in English
Recruitment End Date
- Observational StudyIn person & Online
What is this Study about?
This study explores the hospital experiences of people living with dementia and their care partners, focusing on how hospital and emergency department processes and interactions, often influenced by dementia stigma, influence care quality and outcomes. Insights gathered through interviews will identify barriers and opportunities to improve hospital care for this population. Findings will be used to develop recommendations that promote more responsive, inclusive, and compassionate hospital practices for people living with dementia and their care partners.
Eligibility Criteria
-Live with dementia or are a care partner of someone living with dementia
-Have experience receiving care in a hospital or emergency department in Canada
-Are comfortable participating in a one-hour interview (in English or French)
-Can provide informed consent, proxy consent, or assent
Recruitment End Date
- Observational StudyOnline
What is this Study about?
The goal of this study is to explore the experiences of caregivers who are managing both their caregiving responsibilities and their own health needs, in order to better understand the challenges they face and to identify ways to improve support for them. The findings of this study are expected to help inform policy formation, intervention planning and design that addresses the unique needs of ill-caregivers. The knowledge generated through this study will enhance caregivers’ capacity and sustainability, thereby supporting their ability to deliver high-quality care to older adults while maintaining their essential role within the healthcare system.
Eligibility Criteria
- are 18 years or older
- are currently providing care to an older adult (age 60+) with a chronic illness (e.g., heart disease, diabetes, cancer), while also managing your own health conditions (e.g., chronic illness, mental health concerns)
Recruitment End Date
- Observational StudyOnline
What is this Study about?
We are inviting caregivers, healthcare providers, community organizations, and Alzheimer’s societies to take part in a research study focused on improving support for people caring for individuals with Alzheimer’s disease. Compassionate palliative care is essential for individuals with dementia and their caregivers. However, many families living in rural settings cannot access palliative care unless it is through virtual methods. This study aims to address these challenges by involving caregivers and healthcare professionals to co-design virtual palliative care support.
Eligibility Criteria
1. Are a family member/caregiver providing care to a loved one with terminal dementia.
2. Healthcare providers who medically practice in rural Ontario, focused on delivering palliative care to family caregivers of individuals with dementia
Recruitment End Date
Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor
Toronto, Ontario M4R 1K8
Information and Referral Line: 1-855-705-4636
Email: research@alzheimer.ca
Charity registration number: 11878 4925 RR0001
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