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  • Observational Study
    In person and online

    What is this Study about?

    This study aims to evaluate the acceptance and usability of the GuardIO Family Care app, a mobile application designed to support community safety for individuals living with dementia or mild cognitive impairment and their care partners. The study also aims to analyze mobility patterns collected from the app to explore how mobility data can contribute to the early detection of cognitive impairment. The findings will help improve app design, inform care strategies, and support early intervention efforts for individuals living with dementia or MCI.

    Eligibility Criteria

    You are eligible to participate if you:

    Are 18 years of age or older

    Are living with mild cognitive impairment (MCI) or dementia, or are a care partner of someone with MCI or dementia

    Are able to use a smartphone or tablet with the GuardIO app

    Are willing to participate in the study activities, including using the app, completing questionnaires, and attending an optional focus group

    Can understand and communicate in English (or another supported language, if applicable)

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    Behavioral and emotional changes often accompany dementia and are a leading cause of long-term care placement, even more so than cognitive decline. This study is the first to explore how family caregivers make treatment decisions in response to these emotional and behavioural symptoms. We are interested in understanding whether caregivers turn to medications, consider non-pharmacological strategies such as environmental modifications, or use a combination of both. Using a quantitative behavioural economics model, this study will examine how caregivers weigh the risks and benefits of different treatment options. We are particularly interested in decision-making related to dopaminergic medications (formerly known as “antipsychotics”), which are commonly prescribed despite known risks for people with dementia. The information gathered will help guide the development of resources to better support family caregivers in navigating treatment decisions. Participation involves completing an anonymous online survey and is open to family caregivers involved in medical decision-making for a relative or close friend with dementia.

    Eligibility Criteria

    Participants will consist of caregivers of individuals with dementia who meet the following eligibility criteria:

    Participants must be at least 18 years old,
    Participants must be able to read English fluently,
    Participants must be a family caregiver (partner, spouse, family member, or close friend) of a
    person with dementia
    Participants must be involved in the medical decision-making for the person with dementia,
    Participants must have access to a desktop computer, laptop, or another device with a physical keyboard and mouse/trackpad,
    Participants must not be a professional healthcare provider (e.g., physician, nurse, certified nursing assistant).

    Additionally, the person with dementia whom they are assisting must be community-dwelling (i.e., they cannot be residing in a residential or skilled nursing facility).

    Recruitment End Date

  • Observational Study
    In-Person and Online

    What is this Study about?

    Participants will take part in a one-on-one interview (in person or online) to share thoughts on reminders and changes in behavior that should be tracked by the system. Interviews will last about 60 minutes. A short follow-up (20 minutes or less) may also be requested later to provide extra feedback on the system’s design.

    Eligibility Criteria

    You are eligible to participate if you:

    - Are an informal caregiver of a person living with dementia
    - Provide at least 30 hours of care per week
    - Speak and understand English
    - Are able to give informed consent
    - (Optional) The person you care for may also join if eligible
     

    Recruitment End Date

  • Observational Study
    In-Person and Online

    What is this Study about?

    This study is testing a digital reminder system for people living with dementia. The system sends alerts when daily routines change and collects feedback from caregivers. The goal is to improve the system’s design and usefulness. Results will help make reminder tools more supportive for people living with dementia and their caregivers.

    Eligibility Criteria

    You are eligible to participate if you are a person living with dementia and you:
    - Have a clinical diagnosis of mild to moderate dementia
    - Were diagnosed within the past 2 years
    - Speak and understand English
    - Are able to give informed consent
    - Have internet access at home
    - Are part of a caregiver-participant pair (dyad)

    You are eligible to participate if you are a caregiver and you:
    - Are an informal caregiver (family member or friend)
    - Provide at least 30 hours of care per week to a person living with dementia
    - Speak and understand English
    - Are able to give informed consent
    - Can participate in a home setup session and follow-up interview

    Recruitment End Date

  • Observational Study
    Online

    What is this Study about?

    The purpose of this study is to examine the effect of CARES-D for physiotherapists on learner knowledge, attitudes, and confidence in dementia. We will administer online questionnaires to practicing rehabilitation professionals in Canada who work with individuals with dementia to: 1) Assess changes in rehabilitation professionals' knowledge about dementia; 2) Evaluate shifts in attitudes toward individuals with dementia; 3) Measure improvements in confidence in managing dementia care; 4) Gather participant feedback on the CARES-D training program; 5) Compare pre- and post-training outcomes to determine the program's effectiveness.

    Eligibility Criteria

    - Are a practicing physiotherapist, occupational therapist, physiotherapy assistant, occupational therapy assistant or kinesiologist with a minimum of 6 months of experience.
    - Work with individuals living with dementia, regardless of the setting
    - Work anywhere in Canada
    - Fluent in English

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    The study involves a primary session of paper-and-pencil tasks, and a second session of a computer task, while your heart rate and brain activity is monitored. The aim of the study is to examine how signals are affected from the body to the brain.

    Eligibility Criteria

    - You are between the ages of 18-30 or 60-85

    - Free from conditions (other than amnestic mild cognitive impairment (aMCI)) which affect cognition or cardiac health

    - Fluent in the English language

    - Have normal or corrected-to-normal vision

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    In collaboration with our South Asian community collaborators, our goal is to gain an in-depth understanding of new immigrant, multigenerational, South Asian family caregiving for a relative with dementia amidst COVID-19. The goal is to inform future family-centered, healthcare interventions aimed at supporting equity deserving families during times of crisis.

    To achieve our goal, we are starting to recruit family care partners living in a multigenerational home and caring for a relative with dementia from each of the four groups of South Asian families. We will be using a multiple case study to examine new immigrant, multigenerational caregiving for a relative with dementia from the perspective of four groups of South Asian families; 1) Pakistani, 2) Bangladeshi, 3) Indian, and 4) Sri Lankan. We will also be using secondary data sources, including genograms, ecoMaps, and key documents.

    We will be conducting interviews with a family care partners from each of the four groups. Following these interviews, we will hold four focus groups with a new purposeful sample of South Asian multigenerational care partners to understand if the findings from the interviews reflect their caregiving experiences thereby increasing the reliability of the study findings.

    Eligibility Criteria

    You are eligible if

    1. You are caring for a family member or relative with memory loss or dementia

    2. You are living in a multigenerational South Asian Family

    3. You Identify with any of these four South Asian Countries: India, Pakistan, Bangladesh and Sri Lanka

    4. You live in the Greater Toronto Area (GTA)

    Recruitment End Date

  • Observational Study
    Online & In-Person

    What is this Study about?

    The aim of this study is to develop a large, ethically sources, and diverse database of voice recordings to determine whether voice has biomarkers for particular disease categories, including neurological and neurodevelopmental conditions. The data that is collected will be used to develop a full open-access database to fuel artificial intelligence research related to voice.

    Eligibility Criteria

    • Between ages of 44-85
    • Able to read, write, speak, and understand English
    • Be diagnosed with one of the following conditions:
      • Alzheimer’s disease
      • Parkinson’s disease
      • Amyotrophic Lateral Sclerosis
      • Mild Cognitive Impairment, or other types of dementia
    • Consent to provide a voice/speech sample

    Recruitment End Date

  • Observational Study
    In-Person

    What is this Study about?

    This study will uncover how bilingualism supports healthy cognitive aging by examining the influence of different language experiences on the timing and location of brain network activity. We will examine the timing of brain activity using electroencephalography (EEG; i.e., recordings of electrical brain activity) and the location of brain activity using magnetic resonance imaging (MRI; i.e., images of activity in different parts of the brain). Different language experience factors will additionally be explored. By measuring multiple factors (e.g., the age of second language learning, language proficiency) the effect(s) of different language experiences on the brain and cognition will become clearer.

    Eligibility Criteria

    You are eligible to participate if you:

    - are a French-English bilingual over the age of 65

    - have mild cognitive impairment

    - have Alzheimer's disease

    - are a healthy older adult (i.e., have no cognitive conditions)

     

    Please note that you do not need to be completely fluent in both English and French, just to have some familiarity, experience or training with both languages to be eligible to participate.

    Thank you for your consideration!

    Recruitment End Date