The Alzheimer Society Research Portal connects researchers with Canadians looking to participate in research studies. On this website, find active studies that you can participate in to help advance research on dementia.
The aim of this study is to develop a large, ethically sourced, and diverse database of voice recordings to determine whether voice has biomarkers for particular disease categories, including neurological and neurodegenerative conditions. The data that is collected will be used to develop a full open-access database to fuel artificial intelligence research related to voice.
- Are between the ages of 44-85
- Are able to read, write, speak, and understand English
- Are diagnosed with one of the following conditions:
- Consent to provide a voice/speech sample
This study examines how people with dementia or MCI perform household tasks, focusing on when they seek support, and which prompts help them complete tasks. The findings will help develop technologies to assist them in completing tasks more independently and safely.
You are eligible to participate if you are:
• An older adult aged 60-85
• Fluent in English
• Diagnosed with dementia or MCI
• Enrolled in outpatient care
McMaster University, in partnership with Ressam Gardens Memory Care Community, is conducting a study on the effects of brain stimulation in individuals aged 50 and older with dementia or memory loss. The research focuses on using repetitive transcranial magnetic stimulation (rTMS), a non-invasive technique that delivers magnetic pulses to the brain, to enhance cognitive function and balance. The goal is to extend the positive effects of brain stimulation in improving cognition and balance in individuals with dementia.
You are eligible to participate if you…
1.) Diagnosed with Dementia and/or memory loss by a clinician
2.) Exhibit adequate oral communication skills and cognitive function sufficient to obtain a score ranging between 10-27 on the Mini-Mental State Exam
3.) Walk or stand with or without personnel or assistive devices
4.) Individuals must be greater than or equal to 50 years of age
The aim of this study is to assess the feasibility of the Nighttime Insomnia Treatment and Education for Canadians with Alzheimer’s Disease (NITE-CAD) program. NITE-CAD is a 6-week lifestyle intervention program aimed to improve sleep in people living with dementia by supporting their care partners. The information gathered will be used to improve the program for future offerings.
• Care partner to someone living with dementia with sleep difficulties
• Are living with dementia experiencing sleep difficulties, with a live-in care partner who is interested in participating
• Able to speak and understand English
• Have access to the internet and a computer with a camera and microphone
• Able to participate in an exercise program
• Sufficient cognitive function to follow two-step commands.
Focus groups will discuss lived experiences making decisions about end of life nutrition care with residents living in long-term care to explore strengths or gaps in care that can be leveraged or addressed. Focus group discussions will be used to co-produce resources to support residents and family members with end of life nutrition care decision making (e.g., clinical pathways, decision-trees, patient and family education tools, etc).
- are 18 years or older at the time of the focus group
- are a current or bereaved (minimum 3 months bereaved) caregiver of a Saskatchewan long-term care resident
- are able to speak, read, and understand English
- are willing and able to use Zoom
- have access to a stable wi-fi connection
In this study we aim to explore the motivations and impacts of disclosure a personal diagnosis of dementia or being a care partner on social media. The overall goal of the study is to develop an evidence-based resource to promote benefits of social media for the dementia community while minimizing its harms.
-Identify as an individual living with dementia
-Identify as a care partner
-Are over the age of 19
-Have posted on social media about living with dementia or being a care partner
-Speak English
If you are interested in participating, please contact mallorie.tam@ubc.ca or sign up using the following link: https://ubc.ca1.qualtrics.com/jfe/form/SV_5nGjQ2K27SEZwOi
Early detection of brain changes is crucial to prevent cognitive decline and dementia. This study uses electroencephalography (EEG) to record the brain's electrical signals during simple tasks, with the hope of validating a measure that can improve early detection of Alzheimer’s disease.
We are recruiting 150 individuals with mild memory issues and mild dementia at Baycrest in Toronto and Bruyère in Ottawa. In a separate study we are also recruiting older adults with no memory problems. The results of both studies together will help us determine if our new EEG measure can detect abnormal changes in brain health early on and if it can help predict future cognitive changes. We hope that this new test will be used in the clinic to identify individuals who may benefit the most from early treatment and interventions.
- Are between 60 and 85 years of age
- Have a diagnosis of amnestic mild cognitive impairment or mild dementia due to Alzheimer’s
- Have normal vision (with visual aids, if needed) and no other serious health issues
- Ability to speak English
CAN-PROTECT is a Canada-wide online study recruiting participants and caregivers of persons with dementia to explore how lifestyle, background, and caretaking factors affect our health, quality of life, cognition, behaviour, and function as we age. CAN-PROTECT data will be analyzed and jointly published by the University of Calgary in partnership with the University of Exeter.
- Age 18 years or older
- Reside in Canada
- Have access to a computer/touchscreen device
- Can provide informed consent
- Do not have a diagnosis of dementia
- Additionally, we are enrolling participants who have previously or currently care for persons with dementia for caregiver-specific assessments
- Ability to speak English
This study aims to understand the needs and experiences of caregivers in managing medications for people living with dementia (PLWD) to enhance future resources. In stage one, caregivers of PLWD will be interviewed to gain insights into their needs and preferences for resources. In stage two, healthcare providers from various backgrounds and settings will be interviewed to understand how they support medication management for PLWD.
By understanding caregivers' experiences and needs in medication management, this study strives to contribute to the development of improved resources for caregivers. Ultimately, improving medication management practices has the potential to enhance the quality of life and health outcomes for both PLWD and their caregivers. By empowering caregivers with effective tools and resources, we contribute not only to the well-being of individual caregivers and care recipients but also to the broader societal goal of fostering a supportive and sustainable healthcare system for those affected by dementia.
You are eligible to participate if you are:
- An caregiver who provides informal, unpaid care to a friend or family member diagnosed with any form of dementia
- English speaking
- Live in Ontario as their primary residence
- Support in medication management activities weekly for at least 2 months. Examples of medication management activities include but are not limited to obtaining medications from the pharmacy, preparing and administering medications, and monitoring for side effects
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